Genomics Cloud
When it comes to the genomics cloud, Big Tech can offer cheap and sometimes free storage. For a while, Google charged 25$ a year to store the ‘raw data’ of an individual's human genome (100 gigabytes) with extra costs to conduct analyses. A ‘polished’ version of the same person’s genetic code is less than a gigabyte and costs only $0.25 cents a year to store. This is because the data itself potentially contains what companies call ‘genetic gold’ – that is, DNA ‘variants’ that can lead to (among other things) lucrative targeted drug therapies. The idea is that those who invest in the infrastructure – hardware and software – ultimately become owners of the ‘discoveries’ made by storing, parsing and analysing the data. And so the storage services offered freely to genomic researchers, by Google and Amazon, can essentially pay for themselves later, making huge profits while also benefiting from the perceived contributions they are making to society. This could be thought of as a medical equivalent to ‘greenwashing’, where Big Tech frames itself as being at the service of progress, in terms of humans living, longer, healthier lives. However, Big Tech is also mining the human genome to ends not yet determined and that ultimately benefit its profit motives (i.e. Amazon Rekognition, Azure Cognitive Services, Cambridge Analytica, the Selfish Ledger, etc).
Google and Amazon not only own the buildings and cables that enable the transfer of genomic data from site of research to Google- or Amazon-owned servers, but also the database structures and algorithms used to classify, sort, and define patterns in the data. This is sometimes referred to as ‘health intelligence’ in the ‘genomic analysis pipelines’ – analytics tools used to define a field of predictive and precision medicine – which are very likely to displace (if not altogether replace?) scientific analysis conducted by trained human scientists. Facebook’s Genes For Good, Microsoft Genomics, IBM Watson Health, and Apple’s ResearchKit, etc., are all budding enterprises that feed into the techno-medical imaginary that promises to decode humans to both predict and control variant tendencies. These imaginaries are largely built on medical acceleration (accelerating diagnoses), fostering citizen science (using biometric data), as well as a sense of control and hope for the (techno-fixed) future we’ve been promised since (at least) the Human Genome Project.
The future, and the imagined increased pace of science, is essential to these imaginaries and the ways we come to entrust our lives and bodies to Big Tech. Together, company initiatives attempt to cash in on large scale aggregate data about our behaviours, relationships, and habits, as well as explorations into epigenetics (how our gene expressions change). Genomics research risks becoming totalizing.
How can we counter these totalizing sociotechnical imaginaries by Big Tech? One way is by taking the lead from interdisciplinary / critical / indigenous / STS / feminist / queer / scholars like Nathaniel Comfort, Lily Kay, Evelyn Fox Keller, Jessica Kolopenuk, Alondra Nelson, Kaushik Sunder Rajan, Jenny Reardon, Sophia Roosth, Kim TallBear, and others, in asking questions about this new ‘wheres’ of the genomics cloud – and how locating its politics has huge implications for the directions of future deployments of the genome, beyond the current neoliberal drive to generate more products and services hoping to optimize humans.
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Keller, Evelyn Fox. The Century of the Gene. Harvard University Press, 2002.
Kolopenuk, Jessica. ““Pop-Up” Metis and the Rise of Canada’s Post-Indigenous Formation.” American Anthropologist 120, no. 2 (2018): https://anthrosource.onlinelibrary.wiley.com/doi/10.1111/aman.13044.
Nelson, Alondra. The Social Life of DNA: Race, Reparations, and Reconciliation After the Genome. 1 edition. Boston: Beacon Press, 2016.
Rajan, Kaushik Sunder. Biocapital The Constitution of Postgenomic Life. Duke University Press, 2006.
Reardon, Jenny and Kim TallBear “Your DNA Is Our History”: Genomics, Anthropology, and the Construction of Whiteness as Property.” in Current Anthropology 53, no. S5 (2012): S233-S245.
Reardon, Jenny. The Postgenomic Condition: Ethics, Justice, And Knowledge After The Genome. University of Chicago Press, 2017.
Regalado, Antonio “Google Wants to Store Your Genome.” MIT Technology Review (2014): https://www.technologyreview.com/2014/11/06/249771/google-wants-to-store-your-genome/ November 6, 2014.
Reuters. “Amazon And Google Race To Map Human DNA On Cloud Storage” (2015) https://www.scoopwhoop.com/news/amazon-google-dna-data/ June 6, 2015.
Roosth, Sophia. Synthetic: How Life Got Made. Chicago; London: University Of Chicago Press, 2017.
TallBear, Kim. Native American DNA: Tribal Belonging and the False Promise of Genetic Science. Minnesota University Press, 2013.
Mél Hogan is the Director of the Environmental Media Lab and Associate Professor in Communication, Media and Film.